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… and relax.
During the week I make a point to take a shot of my first morning tea or coffee at work. I like to recognise the moment of transition from my time to work time, from a rather more leisurely state to...
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A check up and a miracle.
Over the years we have made the journey many times to the hospital. Thankfully in recent years most of these trips have been for check ups and consultations rather than the previous mad dashes when we...
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All organised, until I’m not.
This week I have been dealing with such complex issues as, what time is it really? am I sure I don’t have to go to work today? and, remember, when Saturday comes your holiday is over, it’s a work day....
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Weekly round-up.
Following the many postings of November it was my intention to take the weekend off from blogging and get ready for December. Then my youngest had a nasty seizure on Sunday evening while at respite and...
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Nourishing.
At school today she likely had a seizure. They rang home to tell me. I am so glad I made this lasagna this morning. I cooked early to avoid the time pressure of having to get it all together while she...
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Watching and caring.
Sitting tight, holding hands. Today is about watching and caring and praying that yesterday’s seizure is not repeated. Our plans for today changed. 15 stayed home from school, I stayed home from work....
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Trying to get her seizures back under control.
I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present...
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A ‘phonecall, a hospital visit.
An early morning telephone call, a drive to the hospital. Worry and fear constant companions. The overwhelming flood of relief that she is well. The seizure during respite severe but not damaging....
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Gentle moments of today.
Her happy smile when I admire her plait when she returns from school. Knowing that she had some fun and some gentle tending there today after her stint in hospital. The joy I feel in her presence,...
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Not as still as she seems.
The image belies the truth. The quiet relaxation of the pose hides the rising tide of erratic behaviour we has hoped long past. Days when we could leave her for a while with her grandparents or allow...
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