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So we waited for over an hour and it was all over in five minutes.
Actually, that is about the sum of it. Today was 13′s six month check up with her neurologist. Early out fo school, early out of work for Hub, trip home through crazy road works and another trip to the...
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Answers?
I don’t know much except this: there are no easy answers, there are no right answers. You just do what you honestly believe is right and hope and pray that is the case. Then your heart breaks when it...
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All of the words but not necessarily in the right order.
That was yesterday. Yesterday was definitely a, if it can go wrong it will, sort of day. Which sucked. First 13 woke REALLY early and taunted me. Then we turned up for an appointment with the...
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I blinked and they were adults.
Once again respite night has rolled around. Tonight we head out for a meal in what is supposed to be a rather good Indian restaurant. I have been looking forward to it for weeks. It is in celebration...
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Some senses, very little sense.
This summer I am continuing my exploration of creativity, specifically my creativity. Perhaps a more honest thing would be to say I am trying to see if I HAVE any creativity. I have been undertaking a...
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Admitting it isn’t wrong. Plus a recipe.
A two-part post today. Today I spoke to a woman whose situation shared some similarities to my own. She has a profoundly disabled child as well as an older one with no learning difficulties. Through...
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Weekend round-up.
That was the weekend that was. Saturday was our 23rd wedding anniversary, as well as a lovely 35 mm camera which arrived a few days ago, Hub gave me some lovely flowers. I know there are those who...
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It will all be okay.
Over the last year or so we as a family have breathed a collective sigh of relief at the improvement in 14′s behaviour. We have felt a sense of ease, of progress even of daring to think we could...
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Things change.
Autumn is increasingly showing herself in the garden. A sister to Spring, I have always thought Autumn too heralded new beginnings, certainly she brings change. Very young children begin playgroup,...
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Sleep, I remember that.
One of the most challenging aspects of parenting is lack of sleep. Those seemingly endless sleepless nights take a toll on our energy, our drive and clear-headedness. It can be pretty hard to think...
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Time to take a chance.
Last Thursday my youngest had her annual appointment with her neurologist. During last year’s meeting it was agreed that if all stayed well we would review her medication. As of now my daughter is 22...
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Countdown begun.
During the second week in July my youngest had an appointment with her neurologist, the idea was to look her medication with a view to weaning her off one of them. My daughter takes three different...
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… and relax.
During the week I make a point to take a shot of my first morning tea or coffee at work. I like to recognise the moment of transition from my time to work time, from a rather more leisurely state to...
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A check up and a miracle.
Over the years we have made the journey many times to the hospital. Thankfully in recent years most of these trips have been for check ups and consultations rather than the previous mad dashes when we...
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All organised, until I’m not.
This week I have been dealing with such complex issues as, what time is it really? am I sure I don’t have to go to work today? and, remember, when Saturday comes your holiday is over, it’s a work day....
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Weekly round-up.
Following the many postings of November it was my intention to take the weekend off from blogging and get ready for December. Then my youngest had a nasty seizure on Sunday evening while at respite and...
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Nourishing.
At school today she likely had a seizure. They rang home to tell me. I am so glad I made this lasagna this morning. I cooked early to avoid the time pressure of having to get it all together while she...
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Watching and caring.
Sitting tight, holding hands. Today is about watching and caring and praying that yesterday’s seizure is not repeated. Our plans for today changed. 15 stayed home from school, I stayed home from work....
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Trying to get her seizures back under control.
I could tell you about the headache, the constant pressure at the front of my head. I could tell you about the heaviness that sits palpably on my shoulders. I could tell you about the ever-present...
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A ‘phonecall, a hospital visit.
An early morning telephone call, a drive to the hospital. Worry and fear constant companions. The overwhelming flood of relief that she is well. The seizure during respite severe but not damaging....
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