During the second week in July my youngest had an appointment with her neurologist, the idea was to look her medication with a view to weaning her off one of them. My daughter takes three different medications for her epilepsy, one of them three times per day. The hope is that with two clear years since her last seizure that it is time to take this chance.
We were given a neatly completed table setting out the weaning programme. One half table to be removed each month, beginning with her midday dose. However we couldn’t begin right away, letters had to be written to her GP, school and respite. There can’t be any question over the source of the reduction.
The letter arrived several days ago. We made a decision, the cutting back would begin at the beginning of August, begin at the start of the month, have no questions as to how far along in the process we are.
Today is the second day. So far, so good. 14 is showing no negative signs of missing the extra dosage.
For some time I have had a feeling, however unscientific that might be, that the lunchtime tablet could be given up with no ill effect. Now the process has begun I hope I am correct. More than that, I have to hope that the morning and evening tablet are also no longer needed.
Two days safely passed, five months, three weeks and five days to go.
Sending love and hope to you.
Lynn x
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